PV Reporter is a patient-founded education and research resource that helps people understand and live with myeloproliferative neoplasms (MPNs), a group of rare blood cancers that includes polycythemia vera (PV), essential thrombocythemia (ET) and myelofibrosis (MF). Through research updates, specialist interviews, patient stories and practical tools, it helps patients and caregivers find answers and take a more informed role in their care.<\/p>\n
Patient advocate and author David Wallace founded PV Reporter in 2013, after his own polycythemia vera diagnosis in 2009, to create the resource he wished he’d had: a place where medical information, expert perspectives and lived experience come together. David received the 2016 MPN Hero Award, and since launch PV Reporter has reached more than 1.3 million visitors across more than 75 countries.<\/p>\n
Practical tools include an MPN Specialist Directory reviewed by an MPN specialist, a free MPN Clinical Trial Finder built on ClinicalTrials.gov data that requires no personal information, and MPN Search, which surfaces information from trusted medical, research and advocacy sources. Readers can also explore patient stories, coverage of symptoms and quality of life, a curated resource collection, and the MPN Chronicles Podcast.<\/p>\n